Saturday, May 9, 2020

10:35 at night, David Mamet and an in demand liquor store



May 9, 2020
10:35pm
On the condo porch




We’re in the middle of a mini heatwave here while California and New York are having snowstorms in the midst of May. The clouds are rolling in just enough to obscure the stars and keep me from truly enjoying the night sky. I have the David Mamet film “State and Main” playing on the screen, desperate for some inspiration to flow through my fingers.




I haven’t written anything in nearly two months and haven’t posted to my blog since the middle of February. I’m not sure if that’s me neglecting the blog or if it means I’m neglecting a piece of myself. I don’t really see my blog as an extension of myself but I do know that if I don’t express myself somehow it builds up and I get emotionally blocked.




(two raccoons just walked down the fenceline, one after the other, skulking along)




Sarah Jessica Parker is talking about how a particular scene wirtten for the film inside the film is the reason she chose to take the part. Her need to fulfill that need within is how I’m feeling right now.




(cars are coming and going as fast as possible into and out of the parkling lot, desperate to catch the liquor store before it closes for the night.)




I’m not really sure that it matters what it is that I write but at the very least, getting to put something on a hard drive and put it out for my one or two readers is as close as I can get to therapy in this time of pandemic and social isolation.




(why do people seem to think that this minimal amount of traffic is an excuse to speed down the road far above the the speed limit)




I can’t afford any one on one therapy, even if it’s online, not that I have the privacy needed for such things here, and group therapy is obviously cancelled. I have to talk with someone, anyone who might understand what it is that I’m going through. It isn’t that I feel lost and alone.




It’s that I am lost and alone and yet due to living with my mother I can’t even be alone in my solitude.




(pine cones are falling sporadically from the trees beside me, hitting branches on their way down)




David Mamet really is the king of foreshadowing. He drops it in little hints and never hits you over the head with them. Yet each flows and sets up the next scene, the next piece of action or conflict. If you’ve never seen “State and Main” I can recommend it, especially if you are a fan of how films are built from the ground up.




This blog post is pointless. I’m just trying to survive and I hope this helps.




(the liquor store has been closed for over a half an hour and people are still pulling up to it, swearing when they realize they are out of luck.)

Wednesday, February 19, 2020

When Doctors Lose Hope

Doctors aren’t miracle workers. We want them to be and we want, or all too often need, them to be
the source of our hope. Perhaps it’s unfair to put that kind of responsibility upon them but where else
are we supposed to put it. 

I’m lucky enough to have a rheumatologist who actually cares about my wellbeing but today he was
at a loss as to what we should do next. As I am writing this, I am sitting in Starbucks with huge
plaques of psoriasis on both my forearms. I’ve caught the women to either side of me staring at my
arms. My hips are both on fire today, a leftover symptom from when I went outside my comfort zone
and attended a Vancouver Canucks game. Two of my fingers in my right hand are causing me more
trouble than they ever have before. It is clear that my current Taltz regiment is, at the very least,
inadequate and far more likely to be losing its effectiveness all together.

Don’t get me wrong. I know that I am lucky to be living in a country where pharmacare covers the
cost of Taltz in the first place, with each injection costing well over $1500 CDN, and that’s atop the
specialist and general practitioner appointments, as well as the monthly blood tests which are also
covered. However, when all that effort leads to no results it’s difficult to be thankful for very much. 

And perhaps that’s what makes this all so hard, no forward movement. Hell, I don’t think I’m even
holding in one place anymore, instead being dragged backwards no matter how hard I struggle. So
when the doctors are giving up on hope for you it becomes impossible to keep looking forward
because you’re constantly checking over your shoulder for what hellishness is behind you. We will
all face that moment in our lifetime when we have to accept the eventual decline and failure of our
bodies, unless of course something tragic robs you of the ‘opportunity’. I had hoped, in 2012 when I
asked for help, that there was going to be some possibility of forward momentum for the foreseeable
future. That positive outlook lasted at most for two years until I hurt my knee once again and was laid
up, had to stop running and eventually walking.

After that moment, my entire life has been in a backwards direction. I failed my way out of school. I
put back on all my weight. My mental state has been in steady decline, despite the occasional bump
of a good day a couple times a year. My financial situation is about to take a huge turn for the
worse, with my income dropping as much as 40%. I eat and drink because those are the only
reliable things I have in my control which I know will give me an all too short feeling of contentment,
even knowing the incredible guilt I will feel later that day or the next. 

I am alive today not because i fear death but because of what my suicide would do to my mother.
Not even the prospect of finishing and compiling my book is a reason to keep going. Where do I go
from here that isn’t backwards into the mire of loneliness, addiction and utter morbid gluttony?

x

Monday, February 10, 2020

Tears flowed and pugs gave hugs.


My mother and sister came for a visit this afternoon and brought Larry, my sister’s pug,
to spend some time as well. We talked about what I’ve been doing to pass the time,
my new diagnosis of BPD and what was going to happen when I’m sent home on
Monday. Larry, of course, wanted to be the centre of attention, and insisted on being
atop the picnic table we were sitting at. My mood was rather somber despite the
welcome visit and Larry must have sensed this so he walked over to me at sat right
in front of my face. He then turned slightly sideways and put his head on my shoulder,
giving me a hug.



I placed my arms around him and we sat like that for about 20 seconds, allowing my
sister to take this excellent picture. When he backed off he stood up and his tail curled
up, just like a happy pug does, and he gave me a kiss before walking away, happy that
he’d gotten the attention from me that he was looking for. 


It’s hours later and I still can’t believe that happened and each time I think about it tears
begin to well up in my eyes. If you look at the picture you can almost see that he feels
sad for me and knew exactly what he was doing and I’ve never needed or appreciated a
hug more than the one my sister’s dog gave me this afternoon. Wil Wheaton often half
jokes that we don’t deserve dogs and after what happened today, I’m inclined to agree. 

Compared to that hug, all the time and hugs I got from my mom and sister seem to
matter just a little bit less than I thought they would at the beginning of the day.

Friday, January 3, 2020

642 things - Eating oysters

642 Things to Write About

The thoughts of the first man to eat an oyster.

How the hell do I get these open? That damn bird was just eating these out of the shell but the minute I touched it, it snapped shut. At least I didn’t get my finger caught again.

Maybe I should cook them first. I’ll chuck a couple into the fire to see what happens.

Hmm, that seems to be working. Good god! That’s what they look like inside???? I’m not sure I can do this, but I’m so hungry. It looks like a freaking alien.

642 things - Wedding vows

642 Things to Write About

Write wedding vows. The bride is thirty-five and it’s her first marriage. The groom is forty-eight and it’s his third go round at the altar.

(hers) My sweet. I have sat over this piece of paper for hours, striving for the words to explain how much I love you, how much you mean to me and I don’t think they exist. From the moment you first looked at me I had dreamed, desired for this day to come and here we are. All that we have been through has prepared us to recognize in each other the things which we need to fill the hole the Lord provided and I know that he walks beside us every day, ensuring that we are on the right path, together.

(his) I was tempted to make a joke here, just to make you smile and look at me with those eyes. 

Instead, I just want to say that I will always be with you. I will always take care of you. I will always hold you when you need comfort. I will always stand behind you when you need support. I will always be there when you need me. This is not my first time being in this place but for the first time in my life I am certain of where my life will lead, and that marrying you is the greatest thing I could ever do. I will love you, forever.

Friday, July 5, 2019

Splat


“Do something each day that scares you.”

Today will be a day of things that scare me.

I’m sitting in A&W, not my comfortable Starbucks, trying to write and it is loud. There are 30 seniors in here enjoying their morning while I am trying to concentrate. I hate it here. It is triggering my anxiety.  I should have just stayed home. The only thing I can write about is how unable I am to write about the things I need to write about. Sitting here scares me.

After this, I have an appointment with my doctor to have him look at a strange thing growing on my leg. It’s not a cyst, it’s not a zit. It’s a lump, an irregular lump that is weeping. It’s everything they tell you to worry about when they warn us about skin care and warning signs of cancer. I’m scared. Of all the ways to go, cancer is not the one I want to face. I will NEVER allow myself to get to that point. I will take care of things on my own before I would ever let that happen.

After that, I have to talk to my friend about being my power of attorney and making end of life decisions. Having just watched what happened with my uncle and his family, I want everything put down on paper, in nice legal ink. My family may not like my decisions but I don’t really care. How my life ends is the ultimate expression of bodily autonomy and I’ll be damned before I let someone else make that decision for me. I trust my friend. Of everyone I have talked to about what I really think about my life and where I am mentally, it’s he whom I trust the most to carry out my wishes. I am not, Lieutenant Dan from Forest Gump, begging to fulfill his death destiny. Fuck that. I will take control of my own destiny. I have been a slave to what the world has put me through for 45 years and I refuse to allow my life’s end to be something I have no control over it.

Having said all that, knowing my luck I will die without even seeing it coming.

“Watch that bus.”
“What bus?”
Splat.

Leave it to my life to remove the one time I try to take back control.



Sunday, June 9, 2019

I am not a megaphone

Borderline and leaving religion have both taught me certain things. One place where these lessons overlap is the idea of who gets to define another person beliefs or values.

I watched for years as one church would call the members of another church out as "not true Christians." This still happens. A great example is when I hear people say that Catholics are not real Christians when it's obvious that they are. They may not agree with another person's beliefs but since I can't tell from the outside who is a true Christian and who isn't,  I take them at their word that they both believes they are and are trying to be with total sincerity.

I see the same arguments going on within the feminist community, where some women say that, for example, dressing in a sexy manner defies what feminism is about while another will claim that it's exactly what it's about. Some claim that a woman choosing to wear a burqa is anti feminist while women having the freedom to make that choice for themselves is exactly what feminism is about, freedom to choose what to do with their own bodies.

I don’t claim to know if both or even neither is right. I agree with many "feministic" ideals and have, at times, disagreed with what some feminists have claimed I had to agree with. This never sat right with me. I try, I really try to support women's empowerment but it seems that no matter what decision I make, there are issues which seem to make me a feminist to one woman while not a feminist to another.

Today, I was called a non ally to the LGBTQ+ community because I didn’t understand a trans woman's point of view. This has happened before, when I have asked for a clarification of something which was said to me. I have been told, multiple times, that to be a true ally I must subdue my own voice and simply amplify the voices of trans people.

But I am not a megaphone. I am a thinking, breathing human as well and I would never ask another person to subdue their opinion by simply stating that mine is correct because its MY opinion. I cannot bring myself to silence myself and throw away my critical mind. I question everyone and everything I don’t understand. And anyone who has read anything I write and post here knows that point goes for things I believe first and foremost.

I don't deny that those people in the LGBTQ+ community have led lives I don’t understand.  In fact, I say that I don't see how I possibly could. All I can try to do is empathize with their marginalization, sympathize with their predicament and try to get others to open their ears. One of the few things I have hope for is that there will come a day when none of this is even an issue anymore, simply because we all accept each other for we are. Although I will never live to see it.

I can only do the best I can. I want to listen to the stories.  I want to give people a leg up when I can and the fact that I'm a cis man, which limits my ability to do so from an understanding place, is not my problem.

The message I got told me that by doing a daily Pride post in the way I am comfortable is inappropriate, demeaning and making it all about me.
Well, you know what? To a certain extent it is but that's because this is my voice and my IG account and my blog and my brain doing the beat inducing can.

I will happily link to blogs i find interesting and informative,  regram posts I see which speak to me or I think may speak to others. But this is my voice and I'll be damned if I let anyone tell me I don’t have the right to use it just because I'm a straight white man. That's now how you get allies. That's not how you identify enemies. That's how you create apathy because the person being attacked will eventually tune out a message which could very well have taught us all a valuable lesson.

I'm sorry for this rant but I had to let it out somewhere.

Be well everyone.